Access Websites Supporting Family-Centered Care
Discover trusted sources and tools.
28 Day Anti-Racism Challenge by Institute for Perinatal Quality Improvement
Postpartum Health and Self Care Resources
American Academy of Pediatrics Section on Neonatal and Perinatal Medicine
Home organization for specialists in Neonatal-Perinatal Medicine and also welcomes affiliate members working in related disciplines
Dedicated to empowering parents with disabilities by providing resources, support, and community connections
Adult Preemies Advocacy Network
Information, support, and advocacy for the physical and mental health well-being of adult preemies
Alliance for Black NICU Families
Dedicated to advocating for racial and health equity for Black families in the neonatal intensive care unit (NICU) setting
Student-led organization bringing early literacy into healthcare beginning the Neonatal Intensive Care Unit
A guide to prepare NICU parents for home
Caring Essentials Collaborative
Trauma-Informed Professional Assessment-Based Certificate Program
All around support & wellbeing in the NICU; webinars & resources for NICU professionals
Our mission is to support families in the state of Nebraska who have experienced pregnancy loss, infant loss, or a NICU stay by providing resources, education, and emotional support.
Supporting the work of NICU staff and patient families through resources and advocacy to positively impact the neonatal community
Canadian Premature Babies Foundation
Dedicated to providing education, support, and advocacy for premature babies and their families
California Perinatal Quality Care Collaborative
Our mission is to improve the quality and equity of healthcare delivery for California’s most vulnerable infants and their families, from birth and NICU stay to early childhood
Empowering fathers, protecting families
Resources for pre and postnatal hand expression for NICU families and professionals
An interdisciplinary healthcare approach to improving lives
Promoting partnership with families at all levels of health care (individual and policy decision-making levels) in order to improve health care services and policies for children
Coaching & Support for Parents of Preemies by a NICU Mom
Global Foundation for the Care of Newborn Infants
Works to improve newborn health by advocating for high-quality, accessible, and equitable care, long-term follow-up, and continuing care for both mother and infant in each region of the world
Raising the voices of Black families in the NICU and post-NICU
Information and guidance for parents, friends & family, and healthcare professionals around premature babies & prematurity
HAND of Santa Clara – (Helping After Neonatal Death) (handonline.org)
Helping After Neonatal Death
Personalized support before, during, and after a NICU stay; resources for families and NICU healthcare professionals
Health Equity – Vermont Oxford Network (vtoxford.org)
Vermont Oxford Network (VON) on Health Equity and Social Determinants of Health
Hope for HIE (Hypoxic Ischemic Encephalopathy)
Awareness, education, and suport around HIE
Uniting NICU families and providing them with financial, emotional, and informational support
Institute for Patient and Family-Centered Care
Institute for Patient- and Family-Centered Care
Providing life changing, high-quality support for families and the medical teams who serve them in the Neonatal Intensive Care Unit
A mental health solution for all parents and providers
Nonprofit working to improve the health of mothers and babies
Maternal Mental Health Alliance
Perinatal peer support principles
Promotion of mental health, well-being, and condition prevention
Providing Support for NICU Families
National Association of Neonatal Nurses
Making a difference for neonatal nurses, patients, and families
National Association of Neonatal Therapists
Support and resources for neonatal therapists
National Network of NICU Psychologists (NNNP)
Advocate for services and support in your NICU
NEC Society (Necrotizing Enterocolitis)
Resources for parents and healthcare professionals around NEC
NEC UK (Necrotizing Enterocolotis)
Resources for parents and healthcare professionals around NEC
Understanding the lived experience of families suffering baby loss in multiple pregnancy
Free monthly newsletter providing timely news and information around Neonatology and Perinatology
Neonatal encyclopedia for families by Global Foundation for the Care of Newborn Infants
NICHD Neonatal Research Network
Research to Improve the Health of Low Birth Weight and Premature Infants
National Institute for Children’s Health Quality
Resources for improving the health and well-being of mothers and birthing people, children, and their families
NICU discharge preparation and transition planning by National Perinatal Association
Organization of NICU parent leaders
NICU nurse on a mission to change the NICU homecoming experience
NIDCAP Federation International
Newborn Individualized Care and Assessment Program resources and education for families and healthcare professionals
National Perinatal Association (NPA)
Support and adovcacy for babies and families
Perinatal Advisory Council: Leadership, Advocacy, and Consultation
Postpartum Support International
Online Support Groups for Parents
PRISM (Premature Infants’ Skills in Mathematics)
Preterm Birth Inforamtion for Education Professionals
Call to action to improve children’s vision and eye health in the United States
Connection, support, and community to all involved in the NICU journey
Web-based status listing to determine if your hospital system utilizes a quality dashboard
Research – Family Integrated Care
Family Integrated Care Research
Family-led organization that transforms systems of care to better work for all children and youth, especially those with special health care needs and disabilities
New Orleans-based nonprofit that provides support and community to families with babies in the NICU
Sensory integration training across neonatal, perinatal, and pediatric settings
Provides resources for NICU and bereaved families, offers financial assistance, care packages, mental health advocacy, and support.
Supporting families during and after the loss of a twin, triplet, or multiples
Supporting schools and early years settings to help children born prematurely
Bringing Mother’s Voice into the NICU
Society for Maternal-Fetal Medicine
Provides education, promotes research, and engages in advocacy to optimize equitable perinatal outcomes for all people who desire or experience pregnancy
Trainees and Early Career Neonatologists
Provides resources & support for those who have experienced Preterm Premature Rupture of Membranes in their pregnancy and beyond.
Human-centered engineering for sleep, nurturing connections, sensible and compassionate neuroprotective care, and early intervention
Racial Equity Tools
Trauma Certificate Programs, Lisa Wallace
The Ferentz Institute
Trauma-Informed Care Implementation Resource Center
Provides resources from trauma-informed care leaders across the country
Trauma-Informed Certificate Program, Mary Coughlin
Caring Essentials Collaborative
Trauma Research Foundation, Bessel Van Der Kolk
Trauma Research Foundation
Trauma Stewardship, Laura van Dernoot Lipsky
The Trauma Stewardship Institute
Better Practices, Guides, Education, and Publications
Postpartum Support International



