Access Websites Supporting Family-Centered Care

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28 Day Anti-Racism Challenge

28 Day Anti-Racism Challenge by Institute for Perinatal Quality Improvement

4th Trimester Project

Postpartum Health and Self Care Resources

American Academy of Pediatrics Section on Neonatal and Perinatal Medicine

Home organization for specialists in Neonatal-Perinatal Medicine and also welcomes affiliate members working in related disciplines

Adaptive Parent Project

Dedicated to empowering parents with disabilities by providing resources, support, and community connections

Adult Preemies Advocacy Network

Information, support, and advocacy for the physical and mental health well-being of adult preemies

Alliance for Black NICU Families

Dedicated to advocating for racial and health equity for Black families in the neonatal intensive care unit (NICU) setting

Babies with Books

Student-led organization bringing early literacy into healthcare beginning the Neonatal Intensive Care Unit

Baby Steps to Home

A guide to prepare NICU parents for home

Caring Essentials Collaborative

Trauma-Informed Professional Assessment-Based Certificate Program

Carousel Care

All around support & wellbeing in the NICU; webinars & resources for NICU professionals

Connected Forever

Our mission is to support families in the state of Nebraska who have experienced pregnancy loss, infant loss, or a NICU stay by providing resources, education, and emotional support.

Cooper Steinhauser Foundation

Supporting the work of NICU staff and patient families through resources and advocacy to positively impact the neonatal community

Canadian Premature Babies Foundation

Dedicated to providing education, support, and advocacy for premature babies and their families

California Perinatal Quality Care Collaborative

Our mission is to improve the quality and equity of healthcare delivery for California’s most vulnerable infants and their families, from birth and NICU stay to early childhood

Dads Matter

Empowering fathers, protecting families

droplet

Resources for pre and postnatal hand expression for NICU families and professionals

Engage Grow Thrive

An interdisciplinary healthcare approach to improving lives

Family Voices

Promoting partnership with families at all levels of health care (individual and policy decision-making levels) in order to improve health care services and policies for children

FLRRiSH

Coaching & Support for Parents of Preemies by a NICU Mom

Global Foundation for the Care of Newborn Infants

Works to improve newborn health by advocating for high-quality, accessible, and equitable care, long-term follow-up, and continuing care for both mother and infant in each region of the world

GLO Preemies

Raising the voices of Black families in the NICU and post-NICU

Graham’s Foundation

Information and guidance for parents, friends & family, and healthcare professionals around premature babies & prematurity

Hand to Hold

Personalized support before, during, and after a NICU stay; resources for families and NICU healthcare professionals

Health Equity – Vermont Oxford Network (vtoxford.org)

Vermont Oxford Network (VON) on Health Equity and Social Determinants of Health

Hope for HIE (Hypoxic Ischemic Encephalopathy)

Awareness, education, and suport around HIE

ICU baby

Uniting NICU families and providing them with financial, emotional, and informational support

Institute for Patient and Family-Centered Care

Institute for Patient- and Family-Centered Care

Love for Lily

Providing life changing, high-quality support for families and the medical teams who serve them in the Neonatal Intensive Care Unit

Mammha

A mental health solution for all parents and providers

March of Dimes

Nonprofit working to improve the health of mothers and babies

Maternal Mental Health Alliance

Perinatal peer support principles

Mental Health America

Promotion of mental health, well-being, and condition prevention

Mighty Little Giants

Providing Support for NICU Families

National Association of Neonatal Nurses

Making a difference for neonatal nurses, patients, and families

National Association of Neonatal Therapists

Support and resources for neonatal therapists

National Network of NICU Psychologists (NNNP) 

Advocate for services and support in your NICU

NEC Society (Necrotizing Enterocolitis)

Resources for parents and healthcare professionals around NEC

NEC UK (Necrotizing Enterocolotis)

Resources for parents and healthcare professionals around NEC

Neonatal Butterfly Project

Understanding the lived experience of families suffering baby loss in multiple pregnancy

Neonatology Today

Free monthly newsletter providing timely news and information around Neonatology and Perinatology

Neopedia

Neonatal encyclopedia for families by Global Foundation for the Care of Newborn Infants

NICHD Neonatal Research Network

Research to Improve the Health of Low Birth Weight and Premature Infants

National Institute for Children’s Health Quality

Resources for improving the health and well-being of mothers and birthing people, children, and their families

NICU to Home

NICU discharge preparation and transition planning by National Perinatal Association

NICU Parent Network

Organization of NICU parent leaders

The NICU Translator

NICU nurse on a mission to change the NICU homecoming experience

NIDCAP Federation International

Newborn Individualized Care and Assessment Program resources and education for families and healthcare professionals

National Perinatal Association (NPA)

Support and adovcacy for babies and families

PAC/LAC

Perinatal Advisory Council: Leadership, Advocacy, and Consultation

Postpartum Support International

Online Support Groups for Parents

PRISM (Premature Infants’ Skills in Mathematics)

Preterm Birth Inforamtion for Education Professionals

Prevent Blindness

Call to action to improve children’s vision and eye health in the United States

Project NICU

Connection, support, and community to all involved in the NICU journey

Quality Reporting Center

Web-based status listing to determine if your hospital system utilizes a quality dashboard

Research – Family Integrated Care

Family Integrated Care Research

Resources – Family Voices

Family-led organization that transforms systems of care to better work for all children and youth, especially those with special health care needs and disabilities

Saul’s Light

New Orleans-based nonprofit that provides support and community to families with babies in the NICU

Sensory Beginnings

Sensory integration training across neonatal, perinatal, and pediatric settings

The Skylar Project

Provides resources for NICU and bereaved families, offers financial assistance, care packages, mental health advocacy, and support.

The Skye High Foundation

Supporting families during and after the loss of a twin, triplet, or multiples

The Smallest Things

Supporting schools and early years settings to help children born prematurely

smallTalk

Bringing Mother’s Voice into the NICU

Society for Maternal-Fetal Medicine

Provides education, promotes research, and engages in advocacy to optimize equitable perinatal outcomes for all people who desire or experience pregnancy

TECaN

Trainees and Early Career Neonatologists

The PPROM Foundation

Provides resources & support for those who have experienced Preterm Premature Rupture of Membranes in their pregnancy and beyond.

The Zaky

Human-centered engineering for sleep, nurturing connections, sensible and compassionate neuroprotective care, and early intervention

Tools for Racial Equity

Racial Equity Tools

Trauma-Informed Care Implementation Resource Center

Provides resources from trauma-informed care leaders across the country

Trauma Stewardship, Laura van Dernoot Lipsky

The Trauma Stewardship Institute

Von for Health Equity

Better Practices, Guides, Education, and Publications

Weekly Online Support Groups

Postpartum Support International

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