Click for Adaptable Job Descriptions, Guidelines, Toolkits, and More

A library built by members, for members.

Explore a collection of job descriptions, program guidelines, toolkits, and much more shared by FCC Taskforce members!

Bibliographies

Newborn Intensive Care Bibliography | Author: Institute for Patient- and Family-Centered Care

Bill of Rights

NICU Baby’s Bill of Rights | NICU Parent Network

Charts

Parent Progression | FICare

Checklists

EPPS (Early-Parenting Perception & Performance Scale) Checklist | Baylor Institute for Rehabilitation

Quality Control Checklist for Skin-to-Skin Care | Nurtured by Design

Clinical Reports

Trauma Informed Care – APP Clinical Report | American Academy of Pediatrics

Coding

Coding Kangaroo Care Products as Medical Devices | Florida Perinatal Quality Collaborative 

Comics

NICU Tales: Born in the Age of Covid | Nishan Degnarain, MPA

Consent Forms

NICU Parent Buddy Program – Consent Form | El Camino Hospital NICU

Continuing Education

Providing Psychosocial Support in the NICU | NICU Parent Network & National Perinatal Association

Definitions

EPPS (Early-Parenting Perception & Performance Scale) Definitions | NANT (National Association of Neonatal Therapists)

EPIC Tool

Family Snapshot Tool (Compatible with EPIC) | Maya Dahan, MDCM, FRCPC, FAAP

Mental Health Services

Project NICU Counseling Program with betterhelp | Project NICU/betterhelp

Game

Say This, Not That | Erika Mendence, Children’s Mercy Kansas City

Graphic

Family Trauma | McLaughlin, V.

Framework for Family Involvement in Quality Improvement | IPFCC

The Emotional Cauldron | Jack Maypole

Guides

How to Hand Express Colostrum/Breastmilk | El Camino Hospital NICU

Guidelines

Cultivating Compassion Guidelines | Jess Daigle, MD, FAAP

Kangaroo Care Guidelines | Cleveland Clinic

NICU Skin-to-Skin Guidelines | Mary Coughlin & Florida Perinatal Quality Collaborative 

Guidelines & Recommendations

NICU Discharge Preparation | National Perinatal Association

Holiday Recognition

Hannakuh Holiday Resource | El Camino Hospital NICU

Infant Preference Questionnaire

Get to Know Me – Santa in the NICU | Prashanthi Pendem, MS, CCC-SLP

Interaction Notes

NICU Parent Buddy Program – Interaction Notes | El Camino Hospital NICU

Interview Questions for Applicants

NICU Parent Buddy Program – Interview Questions for Parent Buddy Applicants | El Camino Hospital NICU

Job Descriptions

Family & Community Engagement Support Specialist | Anonymous

Family Support Coordinator | Bronson Children’s Hospital NICU

Health Visitor: Specialist Community Public Health Nurses | NHS Constitution

Parent Liaison | Bronson Children’s Hospital NICU

Meaningful Dialogue Prompts

BUFFER & TIDC | Caring Essentials Collaborative

Leveraging Human Connection Case Study | Mary Coughlin & Jessi Barnes

Reflective Prompts | Mary Coughlin & Jessi Barnes

Meeting Guidelines

NEC Society’s 10-step guide for an All-In Meeting | NEC Society

Mental Health Screening Tool

Edinburgh Postnatal Depression Scale | Virginia Commonwealth University

Patient Health Questionnaire-9 (PHQ-9)  | Drs Robert L. Spitzer, Janet B.W. Williams, Kurt Kroenke, and colleagues

Parent Education Tool

Guide to Newborn Health: Understanding Care & Development in the NICU | Newborn Brain Society

Rounding & Handoffs Card | Morgan Kowalski, Golisano Children’s Hospital NICU

Policy

Infant Sign Out Policy (Stroller Walks Outside NICU) | Boston Children’s Hospital, Beth Israel Deaconess Medical Center

Policy Statement

Trauma-Informed Care in Child Health Systems | American Academy of Pediatrics

Position Statements

Trauma Informed Care in the NICU | National Association of Neonatal Nurses

Programs

Pediatric Approach to Trauma, Treatment and Reilience (PATTeR) | American Academy of Pediatrics

Program Descriptions

Family Support Program | Children’s Mercy NICU

Program Evaluations

NICU Parent Buddy Program – Program Evaluation by Mentor | El Camino Hospital NICU

NICU Parent Buddy Program – Program Evaluation by Parent | El Camino Hospital NICU

Program FAQs

NICU Parent Buddy Program – FAQs | El Camino Hospital NICU

Program Overviews

NICU Bridge Program at CHOC – Following Up with High Risk Infants | Children’s Health of Orange County

Projects

Coached, Coordinated, Enhanced Neonatal Transition | Child Bright Network

Project Plans

Fairer Maternity Leave for NICU Parents | Nishan Degnarain, MPA

Resource Sheets

ABCs of Empathy, Hope, and Clear Communication for NICU Parents | Terri L. Major-Kincade, MD, MPH, FAAP

Screening Information & Tools

Perinatal Mood & Anxiety Disorders Position Statement | National Perinatal Association

SDOH Tools

THRIVE Tool | Boston Medical Center

Sensory Interventions Tools

The iRainbow: A developmental care path for infants born preterm | Eilish Byrne, PT, DSc; Allison Freccero, OTD; Melissa Scala, MD

Slides

Application of a Risk Management Framework to Kangaroo Care in the NICU | Ashley Weber, PhD, RN, RNC-NIC

Survey Results

Holding with UVCs & UACs | Jonathan Swanson, MD, MSc, MBA, UVA Health Children’s

Teaching Checklists

FCC Teaching Checklist | El Camino Hospital NICU

Toolkits

Anti-Racism & Equity Toolkit | Academic Pediatric Association

Diverse Voices Matter: Improving Diversity in Patient and Family Advisory Councils | Institute for Patient- and Family-Centered Care

Homeward Bound Toolbox | Florida Perinatal Quality Collaborative

Hospital Donor Milk Implementation Toolkit | University of California Health Milk Bank

Key Learnings for Strengthening Partnerships | Institute for Patient- and Family-Centered Care

NICU Families with a Non-English Language of Preference | CPQCC

NICU Toolkits | Motivating Interdisciplinary Lactation Knowledge (MILK) Research Lab (ucsf.edu) | University of California San Francisco

Three tools for screening for social determinants of health | FPM Journal

Toolkit & Webinars

PAIRED Initiative | FPQC

Training Tips

NICU Parent Volunteer Training | Beacon Health System

Volunteer Position Descriptions

Parent Support Program Coordinator | Children’s Mercy NICU

Welcome Letters

NICU Parent Buddy Program – Welcome Letter | El Camino Hospital NICU

Workshops

SENSE (Supporting & Enhancing NICU Sensory Experiences) Program | USC NICU Therapy Lab

Workshop/Training Modules

Introduction to NICU Peer Support | Canadian Premature Babies Foundation

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The information provided here is intended for professional learning and educational purposes only. It should not be interpreted as medical advice or legal guidance. FCC Taskforce members have generously shared their unit-specific guidelines to support peer learning. Always follow your institution’s policies and consult your neonatology team when making patient-specific decisions.

The views and opinions expressed by members, affiliates, sponsors, and supporters are their own and do not necessarily reflect those of the organization, its Board of Directors, or staff. Membership in or support of the Taskforce does not constitute endorsement of any specific programs, products, or services.

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