Access Websites Supporting Family-Centered Care
Discover trusted resources, education, and tools.
Expert-written resources and information for families
Dedicated to empowering parents with disabilities by providing resources, support, and community connections
Adult Preemies Advocacy Network
Information, support, and advocacy for the physical and mental health well-being of adult preemies
Alliance for Black NICU Families
Dedicated to advocating for racial and health equity for Black families in the neonatal intensive care unit (NICU) setting
Bringing early literacy into healthcare beginning the Neonatal Intensive Care Unit
A guide to prepare NICU parents for home created by National Association of Neonatal Nurses
Canadian Premature Babies Foundation
Dedicated to providing education, support, and advocacy for premature babies and their families
Caring Essentials Collaborative
Trauma-Informed Professional Assessment-Based Certificate Program
Webinars & resources for NICU professionals around support & wellbeing
Supporting families in the state of Nebraska who have experienced pregnancy loss, infant loss, or a NICU stay
Supporting the work of NICU staff and patient families through resources and advocacy to positively impact the neonatal community
Council of International Neonatal Nurses
Sharing knowledge, resources, and best practices among neonatal nurses globally
Improving the lives of babies and families internationally through excellent neonatal caregiver education and skill development
Resources for pre and postnatal hand expression for NICU families and professionals
Nurturing and supporting healthcare team relationships to improve quality and safety of care for babies and their families in the NICU
Supporting the full integration of families in the care of their infants in the NICU
Promoting partnership with families at all levels of health care (individual and policy decision-making levels) in order to improve health care services and policies for children
Global Foundation for the Care of Newborn Infants
Improving newborn health by advocating for high-quality, accessible, and equitable care, long-term follow-up, and continuing care around the world
Raising the voices of Black families in the NICU and post-NICU
Information and guidance for parents, friends & family, and healthcare professionals around premature babies & prematurity
HAND (Helping After Neonatal Death)
Offering empathetic peer support to parents and their loved ones who are grieving the loss of a baby before, during or after birth
Personalized support before, during, and after a NICU stay; resources for families and NICU healthcare professionals
Improving the quality of life for children and families affected by neonatal and pediatric-acquired Hypoxic Ischemic Encephalopathy through awareness, advocacy, education, research, and support
Uniting NICU families and providing them with financial, emotional, and informational support
Institute for Patient and Family-Centered Care
Advancing the understanding and practice of patient- and family-centered care
Transforming neonatal mental health care with both science and heart
Providing life changing, high-quality support for families and the medical teams who serve them in the Neonatal Intensive Care Unit
A mental health solution for all parents and providers
Working to end preventable maternal health risks and death, preventable preterm birth, and close the health equity gap for every family
Maternal Mental Health Alliance
Empowering parents, and those around them, with mental health knowledge before, during, and after pregnancy
Elevating perinatal care standards and preventing stillbirth by increasing awareness, engaging healthcare providers, and sharing evidence-based research
Promoting mental health, well-being, and condition prevention
Providing support for NICU families
National Association of Neonatal Nurses
Making a difference for neonatal nurses, patients, and families
National Association of Neonatal Therapists
Support and resources for neonatal therapists
National Association of Perinatal Social Workers
Maximizing healthy outcomes for babies and families by supporting the unique expertise of perinatal social workers
National Coalition for Infant Health
Enhancing the health and well-being of infants through education, advocacy, and development of resources aimed at parents, healthcare providers, and policymakers
National Institute for Children’s Health Quality
Resources for improving the health and well-being of mothers and birthing people, children, and their families
National Network of NICU Psychologists
Providing mentorship and advocacy for psychology services and support in the NICU
National Perinatal Association
Support and adovcacy for babies and families
Resources for parents and healthcare professionals around NEC (necrotizing enterocolitis)
Preserving and protecting the physical and mental health of families affected by Necrotising Enterocolitis in the UK (United Kingdom)
Resources for understanding the lived experience of families suffering baby loss in a multiple pregnancy
Improving the health of low birth weight and premature infants through research
Free peer reviewed research, news, and information in neonatal and perinatal medicine
Neonatal encyclopedia for families created by Global Foundation for the Care of Newborn Infants
Enhancing neonatal brain health through international collaboration among clinicians, scienctists, parents, and other stakeholders
Supporting families as they navigate life after the NICU with helpful information and free resources
Providing strength, awareness, and community for NICU dads
NICU discharge preparation and transition planning by National Perinatal Association
Organization of NICU parent leaders
NIDCAP Federation International
Newborn Individualized Care and Assessment Program resources and education for families and healthcare professionals
Creating innovative solutions for birthing people and families that mitigate maternal and infant morbidity and mortality, especially marginalized communities
Perinatal Advisory Council: Leadership, Advocacy, and Consultation (PAC/LAC)
Improving pregnancy and birth outcomes through the promotion of evidence-based practices
Perinatal Resource Collaborative
Uniting perinatal professionals (doulas, midwives, lactation consultantds, therapists, educators, and more) into one collaborative, purpose-driven village
Postpartum Support International
Online support groups for parents facing pregnancy loss, infant loss, fertility challenges, etc.
Providing resources & support for those who have experienced Preterm Premature Rupture of Membranes in their pregnancy and beyond
Creating and curating equitable access of underserved populations to patient education, advocacy tools, and outcomes data specific to the preemie population
Advocacy and education around Retinopathy of Prematurity (ROP)
Connection, support, and community to all involved in the NICU journey
Web-based status listing to determine if your hospital system utilizes a quality dashboard
Supporting racial equity through education, planning, advocacy, and evaluation
Ronald McDonald House Resource Hub
Offering resources by need, condition, and state
Providing support to Louisiana-based NICU and bereaved families through comprehensive resources and compassionate care
Sensory integration training across neonatal, perinatal, and pediatric settings
Providing resources, financial assistance, care packages, mental health advocacy, and support for NICU and bereaved families
Supporting families during and after the loss of a twin, triplet, or multiples
Raising awareness of the impact of prematurity on development and learning in early education and school settings
Society for Maternal-Fetal Medicine
Providing education, promoting research, and engaging in advocacy to optimize equitable perinatal outcomes for all people who desire or experience pregnancy
Offering specialized courses and free resources for NICU nurses, therapists, educators, and neonatal leaders
Improving survival and long-term health for highly vulnerable neonates through research, shared protocols, and family-centered care
Providing hope and building community through personal and financial support for families who experience the NICU
Trauma-Informed Care Implementation Resource Center
Providing resources from trauma-informed care leaders across the country
Supporting non-partisan research, education, & informational activities dedicated to innovative clinically informed projects to develop and implement optimal methods, treatments, and modalities to help children and adults heal from traumatic experiences
Human-centered engineering for sleep, nurturing connections, sensible and compassionate neuroprotective care, and early intervention
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The information provided here is intended for professional learning and educational purposes only. It should not be interpreted as medical advice or legal guidance. FCC Taskforce members have generously shared their unit-specific guidelines to support peer learning. Always follow your institution’s policies and consult your neonatology team when making patient-specific decisions.
The views and opinions expressed by members, affiliates, sponsors, and supporters are their own and do not necessarily reflect those of the organization, its Board of Directors, or staff. Membership in or support of the Taskforce does not constitute endorsement of any specific programs, products, or services.
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