Research

Our journey to developing this assessment tool has been a collaborative effort, spanning 17 months of dedicated work by FCC Taskforce leadership. We have worked tirelessly in partnership with our diverse Executive Council of family partners and multidisciplinary healthcare professionals to ensure its effectiveness and have included researchers along the way to review and further validate our efforts.

2024 Work creating the REDCap survey is supported by an independent educational grant from Chiesi USA.

In 2024, we are piloting an assessment tool that will allow us to create NICU FCC Measures in seven categories:

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Framework

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Family Support

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Family Integration Into Care

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Family Integration into QI & Processes

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NICU Environment

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Staff Education

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Balancing

Stanford Impact Labs

The FCC Taskforce has been awarded a Stanford Impact Labs SEED Partnership and is collaborating with NICU Parent Network to use quantitative and qualitative research methodologies to create an FCC standard of care and explore FCC practices at a scale that exceeds prior studies. This work will enable us to develop (1) first-ever FCC benchmarks in the NICU, and (2) identify ways to overcome barriers to FCC implementation.

Check out our project:

Optimizing the Delivery of Family-Centered Care in the Neonatal Intensive Care Unit (NICU)

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