Click for Adaptable Job Descriptions, Guidelines, Toolkits, and More

A library built by members, for members.

Explore a collection of job descriptions, program guidelines, toolkits, and much more shared by FCC Taskforce members!

Bibliographies

Newborn Intensive Care Bibliography | Author: Institute for Patient- and Family-Centered Care

Bill of Rights

NICU Baby’s Bill of Rights | NICU Parent Network

Charts

Parent Progression | FICare

Checklists

EPPS (Early-Parenting Perception & Performance Scale) Checklist | Baylor Institute for Rehabilitation

Quality Control Checklist for Skin-to-Skin Care | Nurtured by Design

Clinical Reports

Trauma Informed Care – APP Clinical Report | American Academy of Pediatrics

Coding

Coding Kangaroo Care Products as Medical Devices | Florida Perinatal Quality Collaborative 

Comics

NICU Tales: Born in the Age of Covid | Nishan Degnarain, MPA

Consent Forms

NICU Parent Buddy Program – Consent Form | El Camino Hospital NICU

Continuing Education

Providing Psychosocial Support in the NICU | NICU Parent Network & National Perinatal Association

Definitions

EPPS (Early-Parenting Perception & Performance Scale) Definitions | NANT (National Association of Neonatal Therapists)

EPIC Tool

Family Snapshot Tool (Compatible with EPIC) | Maya Dahan, MDCM, FRCPC, FAAP

Mental Health Services

Project NICU Counseling Program with betterhelp | Project NICU/betterhelp

Game

Say This, Not That | Erika Mendence, Children’s Mercy Kansas City

Graphic

Family Trauma | McLaughlin, V.

Framework for Family Involvement in Quality Improvement | IPFCC

The Emotional Cauldron | Jack Maypole

Guides

How to Hand Express Colostrum/Breastmilk | El Camino Hospital NICU

Guidelines

Cultivating Compassion Guidelines | Jess Daigle, MD, FAAP

Kangaroo Care Guidelines | Cleveland Clinic

NICU Skin-to-Skin Guidelines | Mary Coughlin & Florida Perinatal Quality Collaborative 

Guidelines & Recommendations

NICU Discharge Preparation | National Perinatal Association

Holiday Recognition

Hannakuh Holiday Resource | El Camino Hospital NICU

Infant Preference Questionnaire

Get to Know Me – Santa in the NICU | Prashanthi Pendem, MS, CCC-SLP

Interaction Notes

NICU Parent Buddy Program – Interaction Notes | El Camino Hospital NICU

Interview Questions for Applicants

NICU Parent Buddy Program – Interview Questions for Parent Buddy Applicants | El Camino Hospital NICU

Job Descriptions

Family & Community Engagement Support Specialist | Anonymous

Family Support Coordinator | Bronson Children’s Hospital NICU

Health Visitor: Specialist Community Public Health Nurses | NHS Constitution

Parent Liaison | Bronson Children’s Hospital NICU

Meaningful Dialogue Prompts

BUFFER & TIDC | Caring Essentials Collaborative

Leveraging Human Connection Case Study | Mary Coughlin & Jessi Barnes

Reflective Prompts | Mary Coughlin & Jessi Barnes

Meeting Guidelines

NEC Society’s 10-step guide for an All-In Meeting | NEC Society

Mental Health Screening Tool

Edinburgh Postnatal Depression Scale | Virginia Commonwealth University

Patient Health Questionnaire-9 (PHQ-9)  | Drs Robert L. Spitzer, Janet B.W. Williams, Kurt Kroenke, and colleagues

Parent Education Tool

Guide to Newborn Health: Understanding Care & Development in the NICU | Newborn Brain Society

Rounding & Handoffs Card | Morgan Kowalski, Golisano Children’s Hospital NICU

Policy

Infant Sign Out Policy (Stroller Walks Outside NICU) | Boston Children’s Hospital, Beth Israel Deaconess Medical Center

Policy Statement

Trauma-Informed Care in Child Health Systems | American Academy of Pediatrics

Position Statements

Trauma Informed Care in the NICU | National Association of Neonatal Nurses

Programs

Pediatric Approach to Trauma, Treatment and Reilience (PATTeR) | American Academy of Pediatrics

Program Descriptions

Family Support Program | Children’s Mercy NICU

Program Evaluations

NICU Parent Buddy Program – Program Evaluation by Mentor | El Camino Hospital NICU

NICU Parent Buddy Program – Program Evaluation by Parent | El Camino Hospital NICU

Program FAQs

NICU Parent Buddy Program – FAQs | El Camino Hospital NICU

Program Overviews

NICU Bridge Program at CHOC – Following Up with High Risk Infants | Children’s Health of Orange County

Projects

Coached, Coordinated, Enhanced Neonatal Transition | Child Bright Network

Project Plans

Fairer Maternity Leave for NICU Parents | Nishan Degnarain, MPA

Resource Sheets

ABCs of Empathy, Hope, and Clear Communication for NICU Parents | Terri L. Major-Kincade, MD, MPH, FAAP

Screening Information & Tools

Perinatal Mood & Anxiety Disorders Position Statement | National Perinatal Association

SDOH Tools

THRIVE Tool | Boston Medical Center

Sensory Interventions Tools

The iRainbow: A developmental care path for infants born preterm | Eilish Byrne, PT, DSc; Allison Freccero, OTD; Melissa Scala, MD

Slides

Application of a Risk Management Framework to Kangaroo Care in the NICU | Ashley Weber, PhD, RN, RNC-NIC

Survey Results

Holding with UVCs & UACs | Jonathan Swanson, MD, MSc, MBA, UVA Health Children’s

Teaching Checklists

FCC Teaching Checklist | El Camino Hospital NICU

Toolkits

Anti-Racism & Equity Toolkit | Academic Pediatric Association

Diverse Voices Matter: Improving Diversity in Patient and Family Advisory Councils | Institute for Patient- and Family-Centered Care

Homeward Bound Toolbox | Florida Perinatal Quality Collaborative

Hospital Donor Milk Implementation Toolkit | University of California Health Milk Bank

Key Learnings for Strengthening Partnerships | Institute for Patient- and Family-Centered Care

NICU Families with a Non-English Language of Preference | CPQCC

NICU Toolkits | Motivating Interdisciplinary Lactation Knowledge (MILK) Research Lab (ucsf.edu) | University of California San Francisco

Three tools for screening for social determinants of health | FPM Journal

Toolkit & Webinars

PAIRED Initiative | FPQC

Training Tips

NICU Parent Volunteer Training | Beacon Health System

Volunteer Position Descriptions

Parent Support Program Coordinator | Children’s Mercy NICU

Welcome Letters

NICU Parent Buddy Program – Welcome Letter | El Camino Hospital NICU

Workshops

SENSE (Supporting & Enhancing NICU Sensory Experiences) Program | USC NICU Therapy Lab

Workshop/Training Modules

Introduction to NICU Peer Support | Canadian Premature Babies Foundation

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